How We Can Help
This parent-run center provides free technical assistance and emotional support to families of children and youth
with special health care needs and the professionals who serve them by:
Assisting with information about the maze of public and private services for their children and youth having
special challenges.
Offering a listening ear and guidance to possible solutions.
Developing, producing and disseminating educational and resource materials.
Technical assistance and workshops on health care financing and best practices for children with special health
care needs.
The Family Voices Lending Library strives to enhance understanding, encourage friendships, teach tolerance, and
dispel myths and stereotypes.
We provide support to families to have a voice in the design, development, implementation, and monitoring of
health policies and programs for children and families.
We work with professionals and families to improve children's health policies and programs in ways that are
helpful to families.
We document family needs and family stories as a basis for policy planning and service implementation.
The NH Family To Family Health Information and Education Center is funded by a grant from the U.S.
Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child
Health Bureau (Project # H84MC09488 ) and The NH Department of Health and Human Services, Title V,
Special Medical Services.
with special health care needs and the professionals who serve them by:
Assisting with information about the maze of public and private services for their children and youth having
special challenges.
Offering a listening ear and guidance to possible solutions.
Developing, producing and disseminating educational and resource materials.
Technical assistance and workshops on health care financing and best practices for children with special health
care needs.
The Family Voices Lending Library strives to enhance understanding, encourage friendships, teach tolerance, and
dispel myths and stereotypes.
We provide support to families to have a voice in the design, development, implementation, and monitoring of
health policies and programs for children and families.
We work with professionals and families to improve children's health policies and programs in ways that are
helpful to families.
We document family needs and family stories as a basis for policy planning and service implementation.
The NH Family To Family Health Information and Education Center is funded by a grant from the U.S.
Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child
Health Bureau (Project # H84MC09488 ) and The NH Department of Health and Human Services, Title V,
Special Medical Services.
FACETS of Epilepsy Care in NH
FACETS of Epilepsy Care in NH: the newest phase of the NH Project Access State Implementation Grant, a project in partnership
with Title V - Children with Special Health Care Needs, NH Special Medical Services. The project continues to be focused on creating
a system of care that enhances the capacity of primary care providers and pediatric neurologists to co-manage the care of children and
youth with seizure disorders. A NHFV staff member serves as Project Coordinator, supporting identified primary care practices in
their improvement efforts, collecting data, drafting reports, and mentoring parent partners on improvement teams.
A NHFV youth staff coordinator is actively participating and engaging other youth in all improvement efforts. Regional forums, meetings
and trainings are occurring to enhance the spread of information, best practices and strategies.
FACETS of Epilepsy Care in NH: the newest phase of the NH Project Access State Implementation Grant, a project in partnership
with Title V - Children with Special Health Care Needs, NH Special Medical Services. The project continues to be focused on creating
a system of care that enhances the capacity of primary care providers and pediatric neurologists to co-manage the care of children and
youth with seizure disorders. A NHFV staff member serves as Project Coordinator, supporting identified primary care practices in
their improvement efforts, collecting data, drafting reports, and mentoring parent partners on improvement teams.
A NHFV youth staff coordinator is actively participating and engaging other youth in all improvement efforts. Regional forums, meetings
and trainings are occurring to enhance the spread of information, best practices and strategies.
| Family To Family Health Information and Education Center |
| Projects and Activities |
Medical Home Activities
NH Family Voices participates in a number of activities that support the implementation of the medical home concept within
primary care practices. A NH Family Voices staff member serves as a Family Advisor and Consumer Consultant on a grant
awarded to the Center for Medical Home Improvement, "Medical Home Transformation in Pediatric Primary Care – What Drives
Change", funded by Department of Health and Human Services, Agency for Healthcare Research and Quality. NH Family Voices
conducts trainings for parents and professionals regarding the medical home concept, facilitates improvement teams within
primary care practices, and mentors parent advisors within healthcare systems.
NH Family Voices participates in a number of activities that support the implementation of the medical home concept within
primary care practices. A NH Family Voices staff member serves as a Family Advisor and Consumer Consultant on a grant
awarded to the Center for Medical Home Improvement, "Medical Home Transformation in Pediatric Primary Care – What Drives
Change", funded by Department of Health and Human Services, Agency for Healthcare Research and Quality. NH Family Voices
conducts trainings for parents and professionals regarding the medical home concept, facilitates improvement teams within
primary care practices, and mentors parent advisors within healthcare systems.
Needs Assessment
As a first step of this project a Needs Assessment was conducted. The process
and findings are outlined in this document. (Click on picture to download)
As a first step of this project a Needs Assessment was conducted. The process
and findings are outlined in this document. (Click on picture to download)
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