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Families And Friends Speaking on Behalf of Children with Special Health Care Needs

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The revised 2008 edition of Maneuvering Through The Maze is now available in Publications

   

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Looking for information about your child's special health care needs, disability? Want to talk to another parent whose been there, done that? Maybe one who's still doing it?

New Hampshire Family Voices is run by parents having children with special health care needs, multiple disabilities and mental health conditions.

NHFV has a free lending library of over 2,000 titles of books, videos, and audio topes with a specialty in children's books on specific conditions and disabilities, sibling relationships, behavior and social issues.

A quarterly newsletter called "Pass It On" is free for the asking.NHFV assist families in negotiating the following systems on a one-to-one basis as well as through workshops:


Health Care Financing

Workshop "Paying The Bills"

nHFV Assist in understanding Healthy Kids Silver & Gold, HCCSD Medicaid, private and employer insurance plans and benefits.

Resources for funding through private and public agencies and organizations.

Health Care Delivery System

Workshops that help with understanding what Family Centered Care and Medical Home consist of and how to collaborate with health care professionals.

Negotiating the resources available within New Hampshire Dept. of Health and Human Services, tertiary care centers and community hospital settings.

Educational System

Assist in understanding the educational system as it relates to their child with special health care needs.

Assist in the understanding of the educational ramifications associated with chronic illness, cancer, and other health care needs.

We also can help in other ways:

Support Group Assistance

Provide technical assistance in starting and supporting support groups.

Assistance with developing flyers, advertising, and using the FV 800 number to field phone calls.

Help with finding support groups in your community or region of the state.

Disease/Condition Specific Materials

Fact sheets, parent packets, articles and periodicals on specific illnesses, genetic disorders, and disabilities.

Daily Living Needs

NHFV has an extensive collection of catalogs and resources for daily living equipment, toys, and adapted equipment.

So whether you are a parent, family member, student, professional or family friend, New Hampshire Family Voices may be able to find what you are looking for, brainstorm ideas about services, find a service that will make your life easier, support you in your helping others, or just be a listening ear.

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The information and resources on the NH Family Voices Web Site are for educational purposes only.

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