Because the health care needs of children can be chronic and complex, parents and caregivers often
struggle to find the resources and services their child needs. NH Family Voices is in a unique position
to help families because we are parents who have children/youth and young adults with special health care
needs and understand the challenges families face. We identify children with special health care needs
based on the impact on their lives and their families' need for related services, rather than only on their
diagnosis.
We operate several projects and activities, each with a specific focus on different ways we can help
families supporting children with special needs to become informed, experienced, self-sufficient advocates
for their children and themselves. There is no charge for the services we provide. We are funded by state
and federal grants, as well as donations from community partners and supporters.
“Children and youth with special health care needs are those who have, or are at risk for, a chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.” (US DHHS, Maternal and Child Health Bureau)
A recent national survey estimates that 50,365 children in New Hampshire presently have a special health care need. Some children require only an accurate diagnosis and routine treatment and monitoring. Other's will need life-sustaining technology, treatment, and medicines throughout their lives.
Children with special health needs tend to receive their health care from a combination of private and public financing and delivery systems, and many depend on multiple providers. This maze of services can be daunting for parents, caregivers, and the professionals who support them.
NH Families Voices is here to help.
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Give us a call
In NH Toll Free: 1-800-852-3345 X 4525 or (603) 271-4525
nhfv@yahoo.com
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Who Are Children and Youth with Special Health Care Needs?
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Welcome to NH Family Voices
Family-Centered Care Tools!
These newly-published Family-Center Care Self-Assessment
Tools are designed as an opportunity for health care
practices and families to assess current areas of strength and identify
areas for growth, plan future efforts, and track progress toward
family-centered care. These tools include a Family Tool, a Provider Tool,
and a Users Guide.