| Care of children with special needs can be chronic and complex. Parents and caregivers often struggle to find the resources and services their child needs. NH Family Voices is in a unique position to help families because we are parents who have children/youth and young adults with special health care, physical, developmental and mental health challenges. We understand the challenges families face. We identify children with special health care needs based on the impact on their lives and their families' need for related services, rather than only on their diagnosis. We operate a "Family To Family Health and Education Center", and several projects, each with a specific focus on different ways we can help families supporting children with special needs to become informed, experienced, self-sufficient advocates for their children and themselves. There is no charge for the services we provide. We are funded by state and federal grants, as well as donations from community partners and supporters. |
| “Children and youth with special health care needs are those who have, or are at risk for, a chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.” (US DHHS, Maternal and Child Health Bureau) A recent national survey estimates that 50,365 children in New Hampshire presently have a special health care need. Some children require only an accurate diagnosis and routine treatment and monitoring. Other's will need life-sustaining technology, treatment, and medicines throughout their lives. Children with special health needs tend to receive their health care from a combination of private and public financing and delivery systems, and many depend on multiple providers. This maze of services can be daunting for parents, caregivers, and the professionals who support them. NH Family Voices is Here to Help |
| Give us a call In NH Toll Free: 1-800-852-3345 X 4525 or (603) 271-4525 nhfv@yahoo.com |
| Who Are Children and Youth with Special Health Care Needs? |
Welcome to NH Family Voices
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Family Voices is an organization of families whose children have special health care needs. Its mission is to
achieve family-centered care for all children and youth with special health care needs and/or disabilities.
Family Voices is very pleased that the Patient Protection and Affordable Care Act has become the law of the
land. We also support the Health Care and Education Affordability Reconciliation Act which was passed.
The new law makes a number of improvements in our nation’s health care system for children and youth with
special health care needs (CYSHCN) and disabilities. To learn more click here, Statement on the Protection and
Afford ability Care Act.
achieve family-centered care for all children and youth with special health care needs and/or disabilities.
Family Voices is very pleased that the Patient Protection and Affordable Care Act has become the law of the
land. We also support the Health Care and Education Affordability Reconciliation Act which was passed.
The new law makes a number of improvements in our nation’s health care system for children and youth with
special health care needs (CYSHCN) and disabilities. To learn more click here, Statement on the Protection and
Afford ability Care Act.
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| Family Voices Statement on the Patient Protection and Affordability Care Act |
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| Parents who have children in Early Supports & Services (ESS) or who have graduated in the last few years. Please Share Your Thoughts & Ideas! NH Family Voices is developing three web based training modules via our website. Modules to be developed will include the following topics: Communicating with professionals IFSP development and Transition from ESS Completing the three modules will give families a baseline of understanding from which to build their leadership skills and increase their understanding of the ESS program. With this in mind, we would like your input as to what information should be included in these trainings. We have a short online survey and are hoping you will take a few minutes to share your thoughts with us. W really appreciate it, thank-you. http://www.surveymonkey.com/s/VHXXRGN |
