| Care of children with special needs can be chronic and complex. Parents and caregivers often struggle to find the resources and services their child needs. NH Family Voices is in a unique position to help families because we are parents who have children/youth and young adults with special health care, physical, developmental and mental health challenges. We understand the challenges families face. We identify children with special health care needs based on the impact on their lives and their families' need for related services, rather than only on their diagnosis. We operate a "Family To Family Health and Education Center", and several projects, each with a specific focus on different ways we can help families supporting children with special needs to become informed, experienced, self-sufficient advocates for their children and themselves. There is no charge for the services we provide. We are funded by state and federal grants, as well as donations from community partners and supporters. |
| “Children and youth with special health care needs are those who have, or are at risk for, a chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.” (US DHHS, Maternal and Child Health Bureau) A recent national survey estimates that 50,365 children in New Hampshire presently have a special health care need. Some children require only an accurate diagnosis and routine treatment and monitoring. Other's will need life-sustaining technology, treatment, and medicines throughout their lives. Children with special health needs tend to receive their health care from a combination of private and public financing and delivery systems, and many depend on multiple providers. This maze of services can be daunting for parents, caregivers, and the professionals who support them. NH Family Voices is Here to Help |
| Give us a call In NH Toll Free: 1-800-852-3345 X 4525 or (603) 271-4525 nhfv@yahoo.com |
| Who Are Children and Youth with Special Health Care Needs? |
Welcome to NH Family Voices
| Come join us on Facebook |
| Family Voices Platform on Health Care Reform |
President Obama has made health care reform a priority and we believe it is critical to include the needs of families of children and youth
with special health care needs and disabilities in shaping new policies and programs.
The Family Voices' Platform on Health Care Reform identifies our position on affordable care, comprehensive benefits, and
family-centered health systems that must be included in health care reform to meet the needs of families.
with special health care needs and disabilities in shaping new policies and programs.
The Family Voices' Platform on Health Care Reform identifies our position on affordable care, comprehensive benefits, and
family-centered health systems that must be included in health care reform to meet the needs of families.
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| Resources on H1N1 for Families Having Children with Special Health Care Needs |
| Bracing for H1N1 NH Family Voices has developed an informational brochure on H1N1 and Children with Special Health Care Needs (English and Spanish) (To download, click on brochure. Paper copies are also available) |
| 2009 H1N1 Information for with High-Risk Medical Conditions This podcast, intended for parents, discusses high-risk medical conditions that put children at risk for flu complications and how to protect children from the flu. |
| Press the picture to go to the CDC Podcast Running time = 8:27 |
| Are you a NH parent who has looked for or used a parent to parent... family to family connection? NH Family Voices is examining the way families of children with special health care needs interact and connect with each other. To better serve families we would like to know if these connections are happening and if so, where and how? Are families connecting via listservs, social networking sites (i.e. Facebook), social events, Dr's offices, Parent to Parent matching (P2P), at school, through playgroups or disability specific support groups? We would really appreciate if you would take a few minutes to answer our survey and assist us in gathering this information. Please click on the gold star and thank-you. |
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| Fore a list of resources on H1N1 visit Family Voices National |
